May 13, 2023
Join us for an enlightening episode of BioTalk with Rich Bendis
as we explore the pivotal role of patient registries in rare
disease research and treatment. Our guest, Harsha Rajasimha, MS,
Ph.D., CEO of Jeeva Informatics Solutions and Founder and Executive
Chairman of IndoUSrare, shares his extensive experience in clinical
genomics data science and precision medicine.
In this episode, Dr. Rajasimha introduces Jeeva Informatics Solutions and IndoUSrare, his non-profit organization. He discusses the importance of patient registries in accelerating rare disease research, the current obstacles in the field, and the potential solutions.
We discuss the role of governments in rare disease research and treatment and the potential for collaboration with non-profits in clinical trials. Finally, Dr. Rajasimha shares the goals of the upcoming Indo-US Rare Summit at the GMU Campus in Arlington, VA.
Tune in for valuable insights from a leader in rare disease research and patient advocacy.